How I Knew Down Syndrome Wasnt That Scary

When we received our birth diagnosis of Down syndrome for Henry, I am reluctant to admit I was pretty sad. I thought I was going to have this "perfect" baby, and now my head was filled with all of the things he wouldn't be able to do. While I accepted the diagnosis relatively quickly and loved our son unconditionally, I still felt very concerned about the future.  What did this diagnosis mean for him? What did it mean for our marriage? What did it mean for our family?

However, I started to notice something very quickly.

I read several books and scoured the internet for support groups those first few weeks. I soon noticed a common theme.
When asked if they would change their child and take away Down syndrome if it were possible, every parent I read about said no. Not one or two parents. Dozens of families. All saying that even if it were possible to take away the Down syndrome, they wouldn't.

This really struck me. I started to realize Down syndrome must really not be so bad. Afterall, if it were, wouldn't all of these families take it away given the opportunity?
It was the first step in me realizing that our son's future is as bright as we want it to be. He has so many opportunities, the same as any other child, and the Down syndrome only makes him more wonderful. It doesn't take away from him at all.

I understand now what these parents were thinking when they said that they wouldn't take anything away from their child if they could. I know that whether Henry was born with 46 or 47 chromosomes, I wouldn't change anything about him. Henry is Henry and he is everything we could have ever wanted in a child.

So Henry, if someday you read this, just remember like Bruno Mars sings, "If perfect is what you're searching for, then just stay the same."


  1. I'm happy to see you using your personal experience to help others, its inspiring to me as someone who battles with depression. It makes me want to raise awareness on mental illness and get rid of stigma. Thank you for your words you cute apple pie. Sunday Scaries

  2. Such useful information! Thank you! My colleague advised using horror stories
    for the same type of content.


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