Showing posts from March, 2017

The Lucky Few

Long before Henry came along, I stumbled upon a beautiful family on Instagram with the handle @macymakesmyday. I loved them. I loved every picture, every update, every video. I was so excited the day they adopted their third child, the second with Down syndrome, that I remember telling Tim about it. What I remember about this family, the Avis's, was that they used the hash tag "#theluckyfew". I clicked it, and soon my phone screen was filled with pictures of children and adults with Down syndrome. "Cool", I thought. "It's a hash tag especially for families of people with Down syndrome." I didn't give it too much more thought. A few years later, as you all know, we also joined the lucky few. I remembered the Avis family two days after Henry was born. I was crying my eyes out in the shower, and this family flashed into my mind. 
They were happy. They had fun. They went places and did thongs together as a family. Their lives didn't end when …

Why I Won't Be Wearing "Crazy" Socks For WDSD

I am about to post a very unpopular opinion.No, I will not be wearing “crazy” socks on World Down Syndrome Day in “honor” of people with Down syndrome.You may have heard of this idea called “Rock Your Socks” for World Down Syndrome Day. There are several different explanations of this campaign. Some wear the socks as a visual representation of chromosomes, since in a karyotype some say the chromosomes look like socks.Some say that the idea is to draw attention to yourself so that people will ask you “what’s with the socks?”, thereby allowing you the opportunity to explain that although your socks may looks different from “regular” socks, they are doing the same job as regular socks, and that this is a metaphor for people with Down syndrome.So, you would like me to wear “crazy” socks to draw attention to how my son looks different from you but basically can do the same job?A “crazy” sock is a metaphor for my child?No.World Down Syndrome Day to me means that we should not be pointing o…