Five Books About Down Syndrome You Should Read

I have somehow carved out the time between diaper changes, work, bottle feeds and preschool drop offs to read several books about Down syndrome since Henry's arrival. Each one helped me in a different way, and I am hopeful that sharing these books will also be helpful for others who may be looking to squeeze some reading in to their busy days!

1. Faces of Hope by Christine K. Wilson
    This book was quite literally just what I needed, when I needed it. Brimming with positivity and showcasing the wonder of Down syndrome, it's the perfect read for anyone who is struggling with accepting the diagnosis or envisioning the future. It was incredibly uplifting for me to look through this book while I was overcoming the initial shock of our diagnosis.

2. The Lucky Few by Heather Avis
     A beautiful memoir of the Avis family, who adopted three children, two of which have Down syndrome. Heather Avis's candid recollection of Down syndrome and it's effect on their lives makes for a remarkable read. It is a book you will devour in an afternoon -- easy to read and hard to put down.

3. We'll Paint the Octopus Red by Stephanie Stuve-Bodeen
     This children's book is wonderful because it focuses on what a child with Down syndrome CAN do, rather than what they cannot. It is the story of a girl who is imagining all of the wonderful things she will do with her baby brother, who has Down syndrome. The pictures are also beautiful.

4. An Uncomplicated Life by Paul Daugherty
     This book is incredible. FPaul is so brutally honest that at times, I swear he had bugged our home and heard actual conversations between my husband and I. The book tells the story of Paul and his wife raising their two children, including a daughter with Down syndrome. Jillian attended college, has a full time job, is married, lives completely independently, and has an adorable dog. I had the pleasure of meeting both Paul and his daughter Jillian at an event in March, and I was blown away meeting the people who's story validated the feelings I'd had and gave me so much hope for Henry's future. It is raw, it is real and it is wonderful.

5. The Parent's Guide to Down Syndrome by Jen Jacob
     This will become your new go-to book for all things Down syndrome. The book is broken down based on what to expect at various ages, as well as which specialists to see and when. The book includes many resources and is incredibly helpful for things on the medical end of the diagnosis.

I hope that this quick list has been helpful for you! Please leave the name of any other books you have found to be helpful in the comments below.


Popular posts from this blog

How I Knew Down Syndrome Wasnt That Scary

Our Sleep Study Experience

How The [bleep] Did This Happen?